Though Andrea is very frail she is home. She has been back to hospital clinic to be seen twice in the few days she has been home. But overall little by little she is dong better each day. It is so wonderful to have her home. It is still hard to see how much she has to struggle with even the simplist things but she is working hard. She is still on continuous oxygen, is very nauseated most of the time, and is still dealing with the terrible nerve pain all over. She is going to have physicaltherapy, speech therapy and occupational- who works mostly with her hands. We are trying to work on getting a more comfortable wheelchair but pray that she won't have to be in it very long, but she has a hard road ahead. She said she missed being normal, to just eat, get up and walk. It's hard but she still pretty positive most of the time. think we too hoped getting her home she would just feel better but now we are enjoying the moments she has and hope they get more and more frequest and I think they really are. She saw her doctor today and we love him. He is going to add some vitamins and change a medication to see if that will make her feel better. She really enjoyed Penny coming home. Penny misses the twins and all their activities since they have been taking wonderful care of her these last couple of months. But we really have enjoyed Penny being home. We have missed her. We still hope to post a few pictures.
Andrea is now reading her posts and cards. She is unable to use the computer yet but I don't think it will be long. Thank you all for your kind thoughts and prayers.love the taylors
Oh, Happy Day!
Click here to see a video of Andrea seeing Penny and appreciating her first visit outside in about three months! She has a long road ahead, but we are so grateful she is such a strong fighter and loving individual. Please say a happy thought on the blog or a prayer at home. She is drawing from all of our strength to get through this difficult time.
Much love,
The Taylors
Much love,
The Taylors
- Monday, May 2, 2011
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11
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The amazing Andrea and her continuing journey to beat leukemia
Dear family and friends
Again I am sorry that this is so late in posting the time has been very busy.
The good news is that Andrea did get off the ventilator. It was a very scary time. Andrea was again amazing. The Pulmonary doctor told her she was a miracle because she had never had a patient survive her injury. We believe that is Andrea's strong will to live and everyone’s thoughts and prayers.
She is on continuous oxygen and still needs a lot of oxygen when she gets up but she is improving and they believe if she continues she won't need it for long in the future. She is still suffering with that terrible nerve pain everywhere. It makes it difficult for her to use her hands, move to get out of bed, stand or walk. She works so hard and little by little she is improving. She has had a few tearful episodes about it but she reminds herself of how bad she was after her first chemo and how she worked hard and it got better. She remains so strong, positive & hopeful for the future, she is very thankful to everyone who cares for her. Her doctors & nurses talk about how amazing and wonderful she is and how so many other employees ask about her. She has loved all the cards and my reading all the wonderful notes inside them. We spent some time with my reading her blog and all of your comment. It was really nice, thank you. Noreen she has really enjoyed all your cards, notes and the care package with the cute Mickey & Minnie mouse (and it did make her smile) and all the magazines, were really just the kind she liked and has started looking through them. It is really hard for her to look through them but she still enjoys them and I think it helps her feel a little more like what she used to do.
So thank you everyone for so much. This is really a hard time for Andrea and she is working hard so anything you all do for her is a moment that feels good in a day filled with hard work and pain.
They are discussing Andrea going home. However in last week she has needed blood and platelets. She also has had an ever increasing fever that they thought was related to one of medications however the fever has persisted and today she had a slight rash. So this morning she felt ruff and she had more tests but we are hoping for a short wheelchair ride off the unit. It will be the first time out of her room except for tests since February 7th. Wow what a journey this has been.
Thank you all so much for all that do for Andrea. Take care Love Andrea, Sharon, Joe & Kathleen
Again I am sorry that this is so late in posting the time has been very busy.
The good news is that Andrea did get off the ventilator. It was a very scary time. Andrea was again amazing. The Pulmonary doctor told her she was a miracle because she had never had a patient survive her injury. We believe that is Andrea's strong will to live and everyone’s thoughts and prayers.
She is on continuous oxygen and still needs a lot of oxygen when she gets up but she is improving and they believe if she continues she won't need it for long in the future. She is still suffering with that terrible nerve pain everywhere. It makes it difficult for her to use her hands, move to get out of bed, stand or walk. She works so hard and little by little she is improving. She has had a few tearful episodes about it but she reminds herself of how bad she was after her first chemo and how she worked hard and it got better. She remains so strong, positive & hopeful for the future, she is very thankful to everyone who cares for her. Her doctors & nurses talk about how amazing and wonderful she is and how so many other employees ask about her. She has loved all the cards and my reading all the wonderful notes inside them. We spent some time with my reading her blog and all of your comment. It was really nice, thank you. Noreen she has really enjoyed all your cards, notes and the care package with the cute Mickey & Minnie mouse (and it did make her smile) and all the magazines, were really just the kind she liked and has started looking through them. It is really hard for her to look through them but she still enjoys them and I think it helps her feel a little more like what she used to do.
So thank you everyone for so much. This is really a hard time for Andrea and she is working hard so anything you all do for her is a moment that feels good in a day filled with hard work and pain.
They are discussing Andrea going home. However in last week she has needed blood and platelets. She also has had an ever increasing fever that they thought was related to one of medications however the fever has persisted and today she had a slight rash. So this morning she felt ruff and she had more tests but we are hoping for a short wheelchair ride off the unit. It will be the first time out of her room except for tests since February 7th. Wow what a journey this has been.
Thank you all so much for all that do for Andrea. Take care Love Andrea, Sharon, Joe & Kathleen
- Tuesday, April 26, 2011
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6
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